living this creative, disabled, soulful life…..
21 Mar 2017 Leave a comment
in Arts and Entertainment, Current Events, Poetry Tags: Betrayal, Emily Dickenson, Hope, Joyce Kilmer, living life to the best of your possibility, Mallory Everhart, Poetry Foundation, trees, Victoria Kaloss, World Poetry Day, youtube
15 Dec 2011 2 Comments
in Uncategorized Tags: Dreams, Fog, Periwinkle, photography, trees, Victoria Kaloss, Writer
I watched the Atlantic Ocean fog follow me as I drove home from the rheumatologist’s office. Good news, normal liver enzyme functions on the blood work report. The vapor had traveled inland, followed me home. And like a good witch, I nestled between the sheets, pillows plumped and adjusted to my joints’ specifications-just so-a relieved exhale buttered my muscles and hazed my mind.
I saw myself sitting in my office. Not my current home office with the flat screen monitor facing the front yard view of taxis shrubs, holly sapling and ink berry bushes the mocking birds and catbirds delightfully snack upon.
The other home office with a floor to ceiling wall of glass facing the open waters. A full view of turquoise, periwinkle sea.
Cloudless sky frames the upper portion of my picture windows. My glass desk with chrome has a wireless tablet. I place my lit cigarette in a clear glass ashtray. Smoke ringlets form and I type away. His hand touches my shoulder. He does that frequently, whoever he is-just gently, ever so gently touches me on the right shoulder from behind. I heard bells.
So here I sit on the green couch in the living room looking out of the window viewing the dogwood branches wiggling from wind and rain, writing down the vision of the clear sea, the clear sky and the clear goal.
Oh, I can hardly wait for the next fog that rolls from the Atlantic Ocean, to my home and to my dreams.
20 Jan 2011 4 Comments
in Uncategorized Tags: accomplishment, anxiety, blessings, Christmas, death, decorations, disability, fear, Frosty, fungi, hip revision, life, neighborhood, photography, Pop, rheumatoid arthritis, trees, vetran, Victoria Kaloss, walk
The date, the day I last walked around the block. My sister and I had decided to stroll around the neighborhood on that beautiful summer evening.
Walking for me had become a challenge, a test of will between me and my deteriorating quarter century old left hip replacement. Anxiety had overtaken my adrenal system as I had envisioned the orthopedic x-ray revealing the two screws, perfectly broken as if a Mason had sawed them right in half. The special glow off the radioactive film brightly shone between the femur, the balled head of the femur and pelvic bone demonstrating proof positive the cement glue had dissipated. Walking around the block proved staying one foot ahead of a homebound life.
At the halfway mark around the neighborhood circle, my heart had pounded with a ferocity I had never known. No hyperventilation, no dizziness, no precursors to true, familiar anxiety attack. I slowed our pace and my sister held my hand. She snuck a check of my pulse and paled. She wrapped her arm around my waist in security, solidarity and sisterly concern. The episode had passed as we switched to a slug’s pace.
Believe you, me-never had the sight of our white-painted peeling front door been so enchanting, so enticing, so exciting! We crossed over our unlocked threshold and sighed in relief. Color, a carnation pink had redecorated my sister’s cheeks.
The phone rang.
Cheryl, PA – caller id informed.
Oh no.
I picked up immediately in fretful anticipation.
“What’s going on, Cheryl?”
“Pop, won’t make it through the night. His heart, he just,,can’t-”
We had sobbed, choking on words we had understood each sentence. She’d call me later. Cheryl knew I’d be there, in Spirit, with them in PA- even though my body had held me prisoner in Jersey.
Cheryl and I are sisters of choice.
Of chance.
Of Fate.
During high school, her brother Glenn and I had become kindred spirits; inseparable friends with a psychic and telepathic unbreakable connection. Invariably, his family had adopted me by default. I am blessed to be considered family, unconditionally loved for over twenty-five years.
Glenn died in 1992.
He left me
his family.
The walk had been surreal. As if Glenn had been forewarning me but I wasn’t listening. Who wants to know their adopted father prepared to meet the Grim Reaper?
Reunite with his son.
Surreal because staying one foot ahead of a homebound life sealed a promise I had made to Glenn before he crossed over. Staying one step ahead took every bit of strength I possessed. I had watched my life fade in front of my very eyes just as I had watched Glenn slip away before my eyes. I fought for survival because I could.
And because Glenn’s terminal diagnosis meant he could not.
He had made me promise to live my life. I heard his plea and my promise to abide in my mind more often than I care to count. I still hear his voice.
So, I persisted.
Frequently I wanted to kill Glenn, personally with my bare hands for suckering my heart strings into such a vow- jerk. I can hear him laughing right now, just in case you were wondering.
Yes, I fought
to live my life.
Not to be homebound watching life scurry past my crackled front door and smuged windows. I had calculated the time my left hip replacement began its demise to the moment the medical community deemed surgery “necessary.”
Out of six years, I had spent two years and nine months stuck in my house from multiple soft tissue damage episodes incurred by the failing orthopedic hardware.
On June 28, 2005 I fought—I mean Mohammad Ali vs. George Forman Heavy Weight Championship Title on the line, fight of the century hard.
My freaky funk heart rate persisted until 5:03am, June 29, 2005.
The moment Pop and Glenn joyously reunited.
****
Left hip revision surgery may have transpired in January 2006 but my lingering fear of walking around the block alone remained intact. I needed the challenge to change from anxious to accomplished.
My last walk around the block?
December 22, 2010.
I created a photographic documentary of my “lone” mid-day walk.
Pop would be proud. He is proud. I feel him with me, everywhere. I am never really alone, never.
He walked with me each step. He pointed out photo ops, rogue pine cones and dangerously uneven concrete slabs. You know how Pops’ can be from anywhere, everywhere, anytime, anyplace—any space.
Ain’t life grand!
Thanks, Pop. Love you 🙂